The Harnisch Family

The Harnisch Family

May 10, 2010

Macy's visit to the Sleep Disorder Doc

WHAT IS THIS? you ask...

This is, I'd say is "straight A's"! Kind of a report card if you will...We were instructed to keep track of Macy's sleep patterns over the last 4 weeks or so. It is very interesting to see it all charted out...I'd say her trends are phenomenal. Check out all that pink & blue...those are her sleep times. And yes, those LONG stretches are thru the night :-) I really don't want to brag, but what can I say, our child is somewhat of a sleep prodigy...
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This past Friday Macy met with Dr. Wilson. A Sleep Disorder doctor at Children's Hospital. We wanted to have someone else give us their opinion as to why Macy makes such loud squeeky high-pitched noises when she is sleeping. While it does not seem to bother her all that much (thankfully), it is quite unsettling for Joe and I. We just can't help but worry!
In any case, here is what the Doc had to say:
She has multiple levels of upper airway obstruction associated with her Trisomy 21 (kiddos with Down Syndrome generally have narrowed and shortened airways as well as narrow nasal cavities). This contributes to Laryngomalacia, which is a soft larynx "voice box"...This intern causes her to have a Stridor (turbulent airflow in the upper airways)...hence...the LOUD squeeky noise.

The ENT doc she saw previously did a scope and basically explained that mucous buildup on her vocal cords is what causes this loud, high-pitched noise.

Okay, so now we have a pretty good idea as to why this is happening. It is comforting to know that, while it is important for us to obviously keep an eye on it, it is nothing for us to be overly concerned about at this time. pheww. We'll all be able to sleep a bit easier knowing this :-)
No more running into her room in the middle of night after a few loud noises...well we may still anyway, just out of habit :-)
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Speaking of "vocal chords"...check out Big Sister McKenzie's. One of her favorite things to do is get up on her stage (the fireplace) and serenade us. She is just so dang cute, I could eat her up!

Here is her dramatic performance of Humpty Dumpty...
video

ooop, I accidentally video taped this sideways. oh well! It's not about the video, it's about the audio anyways :-)


video
A creative rendition of Hey Diddle Diddle (she got most of the words right at least). Simon Cowell would be impressed by her "making it her own"

btw - She has quite the interesting accent here, not quite sure what origin??

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