As I sit here in the middle of the night by Macy's bedside, it is so peaceful and serene. I am able to reflect on the past, present and future. I do not anticipate too much in our lives to change quite honestly. We are already blessed to have wonderful family and friends. Our family has ALWAYS been there for us in a very big way.
Having Macy in our lives is not going to, per-se, bring us "closer" together. As I feel strongly we are already about as "close" as you can get. What I do think, however, is that our little miracle Macy will provide our entire family with a fresh perspective on what is truly important in life. We could all use a little spiritual clarity every now and again. Her spirit and energy will enrich her grandparents, aunts, uncles and cousins just as much as she is already enriching her parents and big sister!
Joe and I already overwhelmed by the outpouring of love and support from not only our family, but friends as well. We have really utilized facebook in these first few days as our life-line/communication tool to the world outside the hospital walls. It has been theraputic to be able to simply send a quick little update as to our and Macy's status. And within a matter of minutes dozens & dozens of friends respond to each update with caring words and well wishes. It means more than you can ever know and truly warms my heart. Not that we feel "alone", but having this connection to friends & family via this non-intrusive communication tool known as facebook, certainly makes us feel "less alone".
We are also very thankful that our friends and family are just as excited as we are about Macy. They are all very positive, upbeat and congratulatory. We have had some people say sorry and apologize that she is sick, but not many. I am glad, because there is nothing for anyone to be sorry about, we are not grieving anything. We are celebrating the new life that God has graced us with. I hope people around us can be as optimistic and "okay" about Macy's condition as we are. We love her for exactly who she is!
A little later...
Joe and I just finished with a nice lunch date down in the cafeteria. Upon returning from lunch we have learned that she is not doing very well with her hour & 1/2 car seat test. This is a test they perform on all babies who are teeny-tiny like Macy. They simply hook her up to some monitors and observe her in her car seat to ensure she is able to maintain an adequate amount of oxegyn while crunched in her car seat. It was also explained that babies with Down Sydrome have shorter and apparently narrower necks, which may also add a slight amount of risk being in a car for an extended period of time. They want to make sure she does not asperate and that her heart rate stays up, etc...
As you know, we had hopes of bringing her home later that afternoon, however we were just told that her billirubin levels had increased significantly and they would need to admit her into the NICU here at Lakeside. Macy will need to be "double-packed", put in the isolate with the blue light shining down (wearing the lovely, oh so trendy goggles), as well as wearing the wallaby, blue band thingy.
You know, the thing that makes babies look like glow worms! :-). We teared up and were initially bummed to hear the news, but all-in-all, very much okay with the idea of staying another night. We were also reassured because they were going to make arrangements for Joe and me to continue to be "checked in" at the hospital in a room on the maternity floor. This helped, as I could honestly not fathom leaving Macy's side, not even for a second.
Big Husker Bowl game this evening...we were going to have Ja & Bethany up to the room for football party. We were looking forward to that, not exactly your most traditional bowl game party venue, but it could have been fun. Plus, I think daddy was excited to sneak in a couple adult beverages to enjoy while watching the game (none for me of course. :(. ). Haha!!!
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Location:still @ Lakeside